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  Monday, Oct 3, 2011 11:16AM / Information / Spreading the Word / Members only
  

               Hello everyone Iam greatful to be here with you. Iam not famous,just a simple man from a small town. I had plans and dreams like everyone in the world. On May 8,2009 my life changed forever. My doctor had ordered a cat scan of my lungs. He told me on my follow up visit that I had    "Idiopathic Pulmonary Fibrosis". I had never heard of it, then his next words were"You need to get on a list for a transplant".

              Idiopathic Pulmonary Fibrosis got it's name,because doctor's do not know what causes you to get it. It does not know age,gender,race or borders. It effects 200,000 of which 40,000 die each year and that's just in the U.S..Unlike Cancer, which I pray for always. There is no Federal Funding,for research,treatments or Public Awareness. As of now, there NO known causes, treatments( other than transplant) or cure for Idiopathic Pulmonary Fibrosis. Life expected without transplant is 2 to 3 years.

              Having a transplant is not a cure, I have traded one disease for a number of others. Out of the 27 pills I must take each day. Some will effect my liver, kidneys, calcium in my bones. Since my transplant, I have had 5 compound fractured vertebra in my spine. For me I have new Goals and Dreams. I want to start a Foundation, to raise funds for Education,Research,Medical Supplies,Medicine and Public Awareness.

              Please if you read this sign my guestbook to let me know I got the word out. As I will be following up with more info as my Dream progresses. Thank You All.

            

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